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A community for people living with Neurofibromatosis
in Western Australia

Support, information and connection
across the lifespan

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About Us

We are a WA-based community supporting children and families living with Neurofibromatosis through information, connection, and advocacy to help them live well.

Round Library

Resources

Find trusted information, tools, and support to help your family navigate life with Neurofibromatosis in WA.

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Support

Connect with people and services that understand NF and are here to support you and your family.

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Donate

Support our mission to improve lives affected by NF—your donation funds local NFAWA office with resources to deliver our services.

NF Register

​Do you or someone you know live with Neurofibromatosis?

 

Click the link below to join our registry and become a member to support, advocate and make a difference for the NF community.

Upcoming Events

  • Multiple Dates
    Nedlands
    14 Apr 2026, 6:00 pm – 7:00 pm
    Nedlands, 11 Aberdare Rd, Nedlands WA 6009, Australia
    Social @ The Niche is a casual networking event where people can meet, chat, and enjoy a relaxed evening together
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  • Kent Street Weir Park
    17 Apr 2026, 10:30 am – 12:00 pm
    Kent Street Weir Park, Kent St, Wilson WA 6107, Australia
    Teddy Bears Picnic All ages are welcome for Bear adventures
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  • Multiple Dates
    Fremantle Navy Club (3rd Floor)
    03 May 2026, 5:00 pm – 7:00 pm
    Fremantle Navy Club (3rd Floor), 64 High St, Fremantle WA 6160, Australia
    An informal opportunity to share a chat and drink with NF mates. Limited food available.
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  • Cafe Bella Rosa
    05 May 2026, 6:00 pm – 8:00 pm
    Cafe Bella Rosa, 51 Archer St, Carlisle WA 6101, Australia
    Social nights are casual networking events where people with NF or connected with NF can meet, chat, and enjoy a relaxed dinner together
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  • Old Tea Pavillion
    17 May 2026, 4:30 pm – 8:30 pm
    Old Tea Pavillion, Fraser Avenue, Kings Park, WA, 6005
    NFAWA is proud to host Western Australia’s first ever Shine A Light on NF Picnic, bringing our community together to raise awareness, connection, and visibility for Neurofibromatosis. We’ll be meeting in the heart of Perth at Kings Park, alongside the iconic Fraser Avenue lit up trees.
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Our Partners

Stan Perron Charitable Foundation Logo

Stan Perron Charitable Foundation generously funded the development of our educational package, a vital 3-year project supporting our community.

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Neurofibromatosis Association WA Logo 2
ACNC Registered Charity Logo

CONTACT US

Neurofibromatosis Association of Western Australia Inc

The Niche, 11 Aberdare Rd, Nedlands, WA 6009

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(08) 6457 7488 (reception)   ​

info@nfawa.org 

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NF Community Registry

Do you or someone you know live with have Neurofibromatosis?

Click the link below to join our registry and become a member to support, advocate and make a difference for the NF community.

Neurofibromatosis acknowledges the Aboriginal people of the many traditional lands and language groups of Western Australia

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