NF Register

Be Part of the First NF Community Registry in WA

Do you or someone you love live with Neurofibromatosis (NF)?
We’re building Western Australia’s first and largest NF Community Registry — and we need your voice.
This important survey will help shed light on the gaps in services, access, and support for people living with NF in WA.
Behind every diagnosis is a lived experience that matters. By sharing yours, you’ll be helping create a stronger, more connected NF community in WA.
Together, we can make sure NF is part of the neurological conversation — and drive change where it’s needed most.
Be heard. Be counted. Be part of something bigger.

NF Registry