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Reading

Explore articles, reports, and personal reflections that shed light on life with Neurofibromatosis (NF). These pieces offer insight, awareness, and understanding. From research summaries to real stories, helping you learn more and feel connected to the NF community.

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NF1 Project

The NF1 Project is a research initiative focused on understanding the genetic factors behind the number and severity of cutaneous neurofibromas in individuals with Neurofibromatosis Type 1 (NF1).

 

It collects data through surveys, skin photographs, and genetic samples to identify why some people develop more tumors than others. The goal is to support future treatment development, as no current therapy exists for these benign skin tumors.

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CONTACT US

Neurofibromatosis Association of Western Australia Inc

The Niche, 11 Aberdare Rd, Nedlands, WA 6009

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(08) 6457 7488 (reception)   ​

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NF Community Registry

Do you or someone you know live with have Neurofibromatosis?

Click the link below to join our registry and become a member to support, advocate and make a difference for the NF community.

Neurofibromatosis acknowledges the Aboriginal people of the many traditional lands and language groups of Western Australia

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