News

Keep up with the latest updates from the Neurofibromatosis community in Western Australia and beyond. Here you’ll find news about events, awareness campaigns, medical advancements, and community stories that highlight the progress and people making a difference.

NF Knowledge Series Webinar:

Gomekli (Mirdametinib), the Latest FDA-Approved Treatment for NF1

Click the button below to watch a webinar about Gomekli (mirdametinib), a newly FDA-approved treatment for Neurofibromatosis Type 1 (NF1). The video briefly explains how the drug shrinks tumors, relieves pain, improves quality of life, lists possible side effects, and highlights the need for long-term treatment.

Watch here

The NAA Neuro Survey,

led by the

Neurological Alliance Australia

NFAWA has been working closely with the Neurological Leaders of WA to formalise a Blueprint to inform the development of the National Neurological Strategy.

The NAA Neuro Survey, led by the Neurological Alliance Australia, is now live — and your insights matter.

Whether you're a clinician, researcher, carer, person living with a neurological condition, or sector professional, this survey is for you.

The stronger our participation, the stronger our case for improving neurological services and care across Australia.

Please take a few minutes to complete the survey — and share it with your networks, colleagues, and communities.

Western Australia’s Neurological Workforce:

Meeting the Challenge Together

Being part of the WA Neurological Leaders Forum NFAWA is actively helping to drive change.

Many Australians are finding it harder to access neurological care when they need it.

Get some more insight here

Survey

News

NF Community Registry