Our Social Media Groups/Pages
Welcome to our social media pages and groups! We're excited to have you here and can't wait to connect with you. Join us for engaging discussions, updates, and a supportive community. Don't hesitate to share your thoughts and get involved!
Facebook Page
Neurofibromatosis Perth Western Australia
This is a new PAGE to find new friends living with NF in Western Australia, and see all our amazing events, fundraising ideas and the people that hold NFAWA together.
Private Facebook Group
NF Little Warriors Perth
Welcome to NF Families Perth – Supporting Kids
This group is for parents, carers, and families in Perth raising young children with Neurofibromatosis (NF1, NF2, or Schwannomatosis).
We’re here to support each other through the ups and downs of navigating the health system, early intervention, NDIS, and everyday life with NF.
What you'll find here:
Casual catch-ups and playgroup meetups in Perth
A safe, judgment-free space to connect with other families who “get it”. Trusted support and shared experience, from diagnosis to everyday care. Guidance around the NDIS, appointments, and accessing services. A place to ask questions, share wins, vent when needed, and build your village. Whether you’re newly diagnosed or a few years into the journey, you’re not alone — we’re stronger together.
Private Facebook Group
A dedicated support and advocacy group for those in Western Australia living with any of the NF disorders. Sharing updates from the NFAWA and CTF Australia about events and meetings, as well as providing encouragement and understanding.
nf_connect
Accessible information, strong peer connections, effective advocacy, education and strong strategic engagement with local Neurological Leaders and the community.