Monthly Events
Events Overview
Past Events
Flight Club Darts
11 September 2026
On Thursday 11 September we had a terrific night of competitive challenges at the Fremantle Flight Club
From Shanghi through the Limbo to Demolition derby
Everyone enjoyed a great evening of FUN!
#RUOK #BrainHealth #Neurofibromatosis #NFAWA #


World Brain Day 2026 Neurological Summit
22 July 2026
Some of our NFAWA Committee attended the WA Neurological Council's World Brain Day Breakfast at Kings Park. Sitting alongside neurologists, researchers, clinicians, advocates, community organisations and people with lived experience was a powerful reminder that real change happens when we come together with a shared purpose.
The morning began with a moving Welcome to Country by Emeritus Professor Dr Len Collard, accompanied by a deeply soul-stirring didgeridoo performance, followed by opening remarks from the Honourable Meredith Hammat MLA.
Hearing Professor Merrilee Needham speak about navigating the neurological journey reinforced so many of the challenges we see through our work and lived experience.
Dr Linda Friedland also left us with a memorable reminder that looking after our brain health requires us to rethink the way we care for ourselves. What resonated most was that, regardless of the neurological condition, the priorities are the same:
💙 Better coordinated care.
💙 Greater support for families and carers.
💙 Healthcare that sees the whole person, not just the diagnosis.
We feel incredibly proud to represent our NF community and to know that our voices are part of shaping Western Australia's first Neurological Health Strategy.
Thank you to Etta and everyone at the Neurological Council of WA for hosting such a meaningful event. Here's to continuing to work together so every person living with a neurological condition is heard, supported and valued.
#WorldBrainDay #BrainHealth #Neurofibromatosis #NFAWA #NCWA

HealthEd Conference
Womens and Childrens Health Update
20 June2026
Healthed has been a leader in the field of healthcare professional development for over 23 years. They are Australia’s largest private provider of CPD for doctors and operate the most popular seminars for GPs.
With headquarters in Sydney, Australia, Healthed is well established as a trusted source of education for general practitioners across the country.
NFAWA was luck to be hosted in a microbooth and had exposure to 1200 GP's from around WA for the day.
We stuck to our aim of raising awareness about
**NF1 Annual GP review guidelines and
**Breastcare for women 30 to 50
A very busy day with loads of Quick talking!
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NF Shine a Light On 2026
17 May 2026
A lovely evening together among the gumtrees at Kings Park. NF Warriors , Family and Friends together we celebrated International NF Day as the City lights slowly shone a light for NF awareness. A great many of our landmarks around Perth came to light in Green and Blue. A Special thanks to Thomas from the Children's Tumour Foundation for coordinating this.


City of Canning Teddy bears Picnic 2026
17 April 2026
A fabulous morning at Kent Street Weir on Friday, 17 April 10:30am–12:00pm 🌿
The gaggle of kids all had fun exploring the park while the mums and grandparents enjoyed coffee and a chat.
Shared lived experiences and information passed on.
Thankyou City of Canning for supporting this event see you again in the Spring.
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NFAWA 35th Anniversary Celebration
30 August 2025
On August 30th, 2025, we hosted NFAWA's 35th anniversary celebration, recognising the organisation's commitment to supporting the WA NF community since its establishment in 1990. The event highlighted NFAWA's growth from its beginnings in a church hall to its current position as a key advocate for neurological conditions. Under the new Strategic Plan, NFAWA continues to focus on community connections, advocacy expansion, and sustainable support for the NF community.

NFAWA at the Australasian Neurological Expo 2025
June 2025
In early June, NFAWA attended the Australasian Neurological Expo at the Perth Exhibition Centre.











