About Us
Our Mission
Our mission is to be the leading voice and support network for individuals and families in Western Australia living with Neurofibromatosis. We are dedicated to ensuring that they are heard, supported, and connected at every stage of their journey.
Our Vision
​We envision a strong, informed, and empowered community where children, young people, and families affected by Neurofibromatosis in Western Australia have access to comprehensive information, peer support, advocacy, and resources. Our goal is to improve their quality of life and create a lasting positive impact throughout the community.
Our Purpose
To achieve this vision, we empower and support our community by providing accessible and reliable information about Neurofibromatosis. We build strong peer-to-peer connections to reduce isolation among those affected. We actively advocate for greater awareness, improved services, and better care pathways. Furthermore, we collaborate with neurological leaders, clinicians, and researchers to enhance outcomes for families living with Neurofibromatosis.
​"Empowering Western Australian families to live well with Neurofibromatosis is at the heart of everything we do."
About the Daisy in Our Logo
The daisy has been chosen as the international symbol for Neurofibromatosis (NF). This resilient flower thrives across all continents, in every climate, and in almost any soil. It flourishes with minimal care, rewarding attention with its fresh, vibrant beauty. Despite its widespread presence, the daisy often goes unnoticed compared to other flowers. Yet, when seen, its simple elegance and quiet strength serve as a reminder of resilience and hope.
Our Committee
Our committee members are committed individuals who support our mission to improve the lives of those affected by Neurofibromatosis. They provide guidance, help with decision-making, and actively contribute to our community efforts.
Mr David Freedman
Chairperson
Zachary Gorbould
Assistant Secretary /
NFAWA Education representative
Mrs Ros Wares
Committee Member /
NFAWA Facebook Admin
Mrs Lisa Chambers
NFAWA Community Development Coordinator
Mr Andrew Blake
Deputy Chairperson
Mr Stephen Savage
Treasurer
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Mrs Naomi Wares
Committee Member /
NFAWA Facebook Admin
Ms Alexis Gorbould
Secretary / Zac's carer
Mrs Jessica Rangi
Committee Member
Mums and Bubs NFAWA Representative
Mrs Linda Clarke
Committee Member
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