NF in Western Australia
This collection of contacts and resources both for you and your health team.
Understanding Clinical Pathways and access to care.
Know the Risk
Take the Action
Women30 to 50 years
with NF1
are 5 TIMES more likely to develop breast cancer compared to the general population
Breastcare
NF1 Patients
-
Individual with a pathogenic variant in the NF1 gene.
-
Individual who meets clinical diagnostic criteria for NF1, but for whom genetic testing has not been performed OR for whom genetic testing does not identify a pathogenic variant.
GET A REFFERAL to Central Referral Service (CRS)
or Go Private ($$)
for a MRI at the High-risk breast screen clinic
(All tertiary hospitals in WA)
Referrals should begin in late 20s
so you’re in the system eligible when you are 30 years old.
(Few months to get in usually)
It's important to consider that mammograms can miss cancers in younger women due to dense breast tissue - which is why adding breast MRIs in contrast to yearly screenings would be beneficial between the ages of 30-50.
Women over the age of 40 with no symptoms are provided free breast screenings through BreastScreen WA, but experts recommend starting these annual mammograms in women with NF1 a full decade earlier.
💻 For more information check out
Breast care management Guidelines
As at 19/03/2026
NF2 patients are not in this risk category
More resources in development -
Do you have something to share with your community let us know.
