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News

Keep up with the latest updates from the Neurofibromatosis community in Western Australia and beyond. Here you’ll find news about events, awareness campaigns, medical advancements, and community stories that highlight the progress and people making a difference.

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NF Knowledge Series Webinar:

Gomekli (Mirdametinib), the Latest FDA-Approved Treatment for NF1

Click the button below to watch a webinar about Gomekli (mirdametinib), a newly FDA-approved treatment for Neurofibromatosis Type 1 (NF1). The video briefly explains how the drug shrinks tumors, relieves pain, improves quality of life, lists possible side effects, and highlights the need for long-term treatment.

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CONTACT US

Neurofibromatosis Association of Western Australia Inc

The Niche, 11 Aberdare Rd, Nedlands, WA 6009

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(08) 6457 7488 (reception)   ​

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NF Community Registry

Do you or someone you know live with have Neurofibromatosis?

Click the link below to join our registry and become a member to support, advocate and make a difference for the NF community.

Neurofibromatosis acknowledges the Aboriginal people of the many traditional lands and language groups of Western Australia

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