Planning to have a child is already very complicated, but having a genetic condition like Neurofibromatosis (NF) adds more considerations related to genetics, health and treatment options. This article discusses various reproductive options including natural conception, IVF and genetic testing for individuals with NF and provides information on where to seek additional support. NF is inherited in an autosomal dominant way. In simple terms, it means that if one parent has NF,

In an important development for people affected by Neurofibromatosis type 2-related Schwannomatosis (NF2-SWN), Japan has approved Avastin, also known by the common name bevacizumab, as a treatment for NF2. According to Chugai Pharmaceutical, the producer of the drug in Japan, this is the first treatment in the world to receive approval specifically for this condition. The approval was granted by Japan’s Ministry of Health, Labour and Welfare on 19 June 2026 and was based on a

Breast cancer is common in Australia, but for people living with neurofibromatosis type 1 (NF1), the conversation needs to start earlier. In the general population, breast cancer risk increases with age, and most cases occur in women over 50. For women with NF1, however, the risk of developing breast cancer before 50 is five times higher than for women without NF1. This means breast awareness and screening plans should not be left until midlife.